Love Grace Hope

Since the last update, we have not had much to report. JC has had a couple of appointments over the past couple of weeks. With her most recent transfusion unfortunately, her iron numbers did increase. Thankfully, they have started to go back down. They are continuing to monitor her numbers and continuing the chelation therapy.…

This past week has been quite tumultuous; however, we got the beautiful privilege of celebrating JC’s birthday as well. The juxtaposition has been quite emotional. Unfortunately, we had to take JC to this hospital this week due to a prolonged seizure. While there, she spiked a fever and was treated for an infection. Fortunately, they…

I have been delaying this update for some reason. Almost every day over the past 8 days, I have planned to log on, but each time I am distracted and decide to delay another day. For that I apologize, I know many of you have been faithful to pray for JC and our family and…

Since the last post, JC has had two appointments. We have had some adaptations, but continue the relative course set out for JC. Two Fridays ago, JC’s iron numbers did not decrease as significantly as we had hoped. This was pretty disheartening for us; however, her hemoglobin was high enough that she did not need…

Some people say no news is good news, but my experiences this past year has taught me that this saying isn’t always accurate. There is not too much of an update from the last post as we have been patiently awaiting the next appointment. We continue to go through the chelation therapy process every night,…

This week has been less chaotic than the previous weeks, and our goal is to take each day as it comes. We have become more homebodies than ever as we attempt to keep JC free of colds and other germs through this waiting period. We are starting to get a rhythm of routine back, and…

I am thankful to report that over the last week and a half we have been able to settle down a bit. JC is still undergoing chelation therapy every night at home, and with prayers, support, and deep breathing exercises, it has started to go much better. This has been a struggle as we have…

The past couple weeks have been fairly busy for us, but there have been praises along the way. The first big provision was two Tuesdays ago when we received a call letting us know that the hospital was able to move JC’s MRI up to this past Wednesday (almost a month early)! This past week,…

On this trip, we were able to stop by an aquarium and spend some time doing something fun. I have always loved looking at the glowing sea-life God has created. There is such beauty in the glow – almost mesmerizing at times and always peaceful. Bioluminescence is a design God made for quite a bit…