Category: Updates
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The Most Astonishing News
Thank you to each of you who has held JC up in prayer and showered her with love, compassion, and gifts! We have the best news! JC has continued to improve well beyond expectations! Glory to God! JC’s red blood cell counts are now in the normal range consistently. Her white cell counts continue to…
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Summer Recap
Thank you for bearing with our unanticipated summer sabbatical from the blog! This summer has been full of life changes, events, and some good news! JC has gone all summer without needing a blood transfusion! There are not enough words to describe the elation and thankfulness we have for this unexpected blessing! Her hemoglobin has…
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Positive Turn
My heart is so overwhelmed with the blessings of the past couple weeks! We have received some very unanticipated yet miraculous news! It started a couple of weeks ago when we went for a blood check, and JC’s hemoglobin count increased on its own by a small amount! This news was truly astonishing because since…
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🌈 Rainbows 🌈 Hope 🌈
Spring is in full force, and it has brought the beauty of new growth. All that has been lying dormant is now full of beauty and promise. Things have been fast-paced, but we have been able to enjoy time outside. JC’s has been able to hold onto her last transfusion for 6 weeks! This is…
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This is Life
A quick thank you to all who have borne with us during our weeks long silence. To be honest, it has felt as if there is not much to report; however, I am starting to realize that is not true. JC has had challenges her entire life, and there have always been points where I…
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The Unexpected
Over the last few weeks, we have been preparing for some big appointments for JC in Cincinnati. The past 6 months, JC has been undergoing chelation therapy in hopes that her iron overload would be reduced in her organs. The iron overload needed to be significantly reduced in order to move forward with the bone…
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Do You Want to Build a Snowman
The past couple of weeks have felt somewhat normal until we ended up in the hospital. With JC’s condition, any significant fever requires hospitalization and precautionary antibiotics. Simply put, her body does not have enough white blood cells to fight off infections correctly. I think every time we end up in the hospital, it feels…
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Unseasonably Warm
I hadn’t realized how long it had been since I posted an update! We’ve had some schedule changes and busy weeks, so time has gotten away from me. I am so happy to report that the port has helped tremendously with JC’s anxiety at appointments. It is still scary and tough, but she has been…
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Happy New Year
The end of 2022 brought its share of surprises! I can hardly believe we are already in 2023! To be honest, I thought we would be in the transplant stage by 2023, but we are still waiting on her iron numbers to get to a desirable number. JC did have surgery shortly before Christmas to…
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Thank You
We have been fairly busy over the last week or so. I was very thankful for this past weekend, and the ability to get some time away from the craziness and spend time together, relaxing. JC did receive an additional blood transfusion last week. Thankfully, her iron numbers are still declining overall. We also had…
Love Grace Hope 